Confirmed

Dr Fearon called us this evening. He received and reviewed the CT scan and confirmed that Landon's Lambdoid suture is closed and that he will need surgery. I asked him if he had any doubts, and he said no. This is all now becoming so real. We have been given the Craniosynostosis diagnosis by 3 independent doctors.


We talked for about 45 minutes and he answered all of my questions. We talked about his rate of blood transfusions which is much lower than the national average which ranges from 90-100% of patients needing a transfusion. His rate is only 19%. He believes his rate is much lower due to the steps he takes to reduce blood loss. Landon will be given Procrit Injections before surgery to increase his red blood cells before surgery. He will also recycle Landon's own blood, and he will be given that first, if he starts to lose too much blood. He also mentioned we will have the option of using a private blood donor if we prefer over a blood bank. This is something that we would plan for ahead of time, so the blood was there on hand, in the case he needed a transfusion.

We also talked about how the week of surgery will go. Basically the day before surgery we will have about 6 hours of pre-op stuff at the hospital. After surgery, he will be in the PICU for a few days, and then moved to a regular floor. We could be cleared to go home as soon as 6 days.

We will have follow up appointments 6 weeks, 12 months, and 2 years post surgery. Then at ages 5, 10, and 16. His first MRI will be at the 12 month visit.

I have tons of faith in Dr Fearon already and we have not even met him in person. I am amazed that in 11 short days since finding this doctor, he has showed so much sincerity and concern for our little boy. He welcomed us to call or email at any time with any questions.

We have our appointment in Dallas to meet Dr Fearon on May 10th! Booked our flights tonight, and we are very excited to visit some wonderful friends while we are there.