Landon's Journey with Lambdoid Synostosis: Two down....one to go

Friday, June 18, 2010

Two down....one to go

Landon had his second Procrit shot on Wednesday. He did great, and is such a trooper! The picture below is right after they took his blood for a CBC. He is so strong and brings so much joy to our lives. We love him and his brothers so much.

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Landon

Landon is the oldest brother of a set of twins (he beat Grayson into the world by 1 minute), and the younger brother to a happy and healthy 3 year old, Aidan. At 6 months Landon was diagnosed with Craniosynostosis, specifically Lambdoid Synostosis, after a misdiagnosis at 3 months. Lambdoid Synostosis is so rare, that research suggests that it occurs in less than every 1 in 300,000 live births.

Landon had a CRV in Dallas, TX on June 29th 2010 by Dr Fearon. Lanond is doing amazing and recovering well.

To contant me, please leave a comment on any of the posts. I will return emails and would be happy to talk to anyone who has questions regarding Landon's journey.